We have appointed a new Patient and Public Involvement Lead to spearhead our groundbreaking research initiative.

Welcome Lesley Booth MBE. Lesley has spent more than 20 years at York University where she was head of the Centre for Lifelong Learning. She was also the university’s Strategic Projects Lead.

She is uniquely placed to support our work having suffered from Inflammatory Bowel Disease for some 30 years before having a permanent colostomy in 2015.

Her appointment in a new role at the charity marks the expansion of our People and Research Together (PaRT) project which seeks to bridge the divide between research scientists and people living with bowel disease, thereby driving the best science.

Lesley will help us become one of the sector leads for PPI

We already have 400 people registered on its PaRT database with an aim to double that figure by 2020.

“I am delighted to be part of this exciting initiative, I’m passionate about education - one of the most powerful weapons for driving change. My role enables me to foster educational opportunities between researchers and the public.

“Research is all about investigating and exploring new knowledge with a purpose, and it is the public that gives such research that purpose.

Quality research into bowel disease and cancer cannot be delivered without the involvement of patients and the public.

“My role is to ensure that our PPI objectives underpin all the work we do. Patients and the public always offer unique and invaluable insights so that bowel research is enriched by involving those it aims to help.”

Our Chief Exec Deborah Gilbert, has warmly welcomed Lesley to the team. “The response to the pilot phase of our PaRT project from patients and research scientists was overwhelmingly positive. We are confident that Lesley’s experience and passion for learning will make a huge impact on its ultimate success.”

The PaRT programme will be part-funded for three years by a £45,000 grant from the Garfield Weston Foundation, which we announced in November 2017.