We've been awarded £45,000 for People and Research Together

The grant, extending over three years, comes from the Garfield Weston Foundation which supports good causes across the UK.

It will support the development of our People and Research Together (PaRT) project which seeks to bridge the divide between research scientists and people living with bowel disease, thereby driving the best science.

Their experience is fed back to scientists so that research can be directed and disseminated in the most effective way.

Reaction to a pilot phase of PaRT reflected a marked desire by people with bowel disease to have an active role in research, beyond taking part in clinical trials.

“We were humbled by the number of people wanting to become involved and within a year we had beaten our target of 400 people registered on our database,” said our Chief Executive Deborah Gilbert.

Bowel disease is very distressing and can lead to great loneliness. The chance to come together and contribute to future improvements in diagnosis, care and management is very empowering.

“The response from the scientific community was equally encouraging and showed a real appetite to make public involvement meaningful.”

The Garfield Weston grant will fund a dedicated Patient and Public Involvement Officer to run the PaRT programme over three years.

The aim is to recruit 800 people as PaRT members by 2020.

“Our forward-thinking philosophy on patient involvement has been mirrored by institutions such as the National Institute for Health Research and Association of Medical Research Charities. Because we are relatively small, we have the flexibility to trailblaze in this way and are honoured that the trustees of the Garfield Weston Foundation are supporting us at this critical stage,” 

Celebrating its 60th anniversary in 2018, the Garfield Weston Foundation is a family-founded charitable grant-making foundation which supports causes across the UK with grants totalling more than £60m each year. 2018 also marks its £1 billionth donation since it was established.

Garfield Weston

Find out more about the People and Research Together project